Thursday, June 5, 2008

Meet Miracle Baby Bela

So I recently had the opportunity to do some shots for my friend Avery of her little precious baby Bela. Bela was born with "Hypoplastic Left Heart Syndrome (HLHS). It is one of the most complex cardiac defects seen in the newborn and remains probably the most challenging to manage of all congenital heart defects." Before Bela was born Avery was told that, "I'd probably lose her soon after we found out (around 18 weeks) to being told now that she'll be born and have 3 open heart surgeries with a very unsure outcome."
Bela is now 3 months old and fights everyday to stay alive. Her story is truly a miracle. She has already undergone several surguries and has beaten all the odds.
The Sunday following this portrait session, Bela went into heart failure twice. The day after being revived from heart failure x-rays showed that her lungs were completely full of either fluid or mucus of some sort. Still, Bela has beaten the odds every day since then. That's not to say that life has been comfortable or easy. When I was taking her picture I could hear her fight to breath in every breath she took. She is a real determined little gal.
I am convinced that Bela is still alive today because of her faith and because of the faith of her mom and dad. It has been so humbling to see all of the miracles that have taken place with her. Avery and Tanner are an amazing example to everyone who knows what they are going through. You will not meet anymore more humble, loving, and strong in their faith than they are right now in this very trying time. Through their difficult times they have been a light house to those around them, strengthening many of our testimonies
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Please remember Bela in your thoughts and prayers as she has an upcoming surgrey which will be the most invasive yet.
Here are a few shots of the many taken of sweet little Bela...
In this first picture you can see Bela's scar from where she had surgrey. I believe it tells the story of all that she has gone through and what a fighter she is...

















Averi is so sweet and gentle with Bela it's so perfect. She might tell you she's stressed out but I feel peace when I've been around her more than anything...










This is Bela's little brother, Benson. Ellah and him are only a month apart. He is such a cute kid and I can tell that he loves his little sister dearly...